Monday, 29 June 2015

Tramlines

And no I don't mean Sheffields very own music festival. I mean the 'Wanna be' razor slits in my eyebrows that I so wish were razor slits!! But are in fact another side effect to Chemotherapy. I looked down at my mobile phone today, and it was covered in eyelashes and brow hairs. :( pubes first, facial hair second!! JOKE I've never had facial hair. Not that theres anything wrong with facial hair on men or women, HELP me please, i'm trying not to be offensive!!

I can't even be trusted realistically to put falsies on safely, and not appear like I'm being infested by stray spiders on my cheeks! Ooops i nearly said hair, forgot I haven't got any!!

I'm trying not to alter my routine too much, I'm still cycling in the morning, but basically it's because it's easier than walking!

I'm quite interested in the Greenspeed Magnum :) mmmmm £4700

Wednesday, 10 June 2015

Hickman Line? - I've just realised, my friends called Kevin Hickman....:D

I am so knackered, after spending 6 hours walking round Western Park Hospital today.

I feel like rejoicing because I actually asked about the Hickman Line as an alternative, to potentially disabling my strong arm? Why didn't they just miss out the lymph nodes all together and thrust the line into one of my main arteries in my chest? One of the consultants replied when I asked why it wasn't a first choice 'It's a bit of a faff'. For Who? was my reply :) Because I don't mean to sound ungrateful, but obviously I'd rather have the procedure that runs no risk to me losing my functions in my right arm!  especially as it is my non affected side.

After been educated by my taxi driver, on the way to hospital this morning :) Who's Wife had now been clear of Cancer for 10 years!! The Pic Line Nurse, began educating me for real, and telling me the whys and wont's, of Picc Line versus Hickman Line. I concluded that it was a no brainer, but was immediately worried that I'd put people out etc!! Liz came for lunch before leaving at 12.15. My next appointment was with the Oncologist, I met with Sue and Amanda, Who took notes for me. I've been prescribed Steroids wich I needv to take the day before chemo and during and after- yummy I can't wait for those then!!

Oh I forgot to say? What a fab woman Chris is in the library, with the Bandanas. Of which I bought a ready made one with a tie bit that flows over my shoulder, like pretend hair!! I am sad I know, but I can dream of having luscious locks again?? Well I got one from her, and the lovely nurse I met when trying to organise a Hickman Line for tomorrow? Well she gave me 3 more!! So Liz if your still wanting to borrow one for Glastonbury ?? Although I'm not sure that they look very nice when you've got real hair!!

Sadly, I AM NOT going to SC4A tomorrow, but I think it's a small sacrifice to pay?

So to my friends at TLAP I will be nearly back to my delightful self, by the Gig in Bournmouth, but you don't know the real me (Cackle!!! Cackle!!!), I will be bald as a Coot!! mind you!! (Coot's ok to say, isn't it? I think it's a big bird???  I've either been incapacitated due to a double fracture, or struck down with Cancer a week, after been discharged from Orthopaedics, but hey ho! I will work out the dates for you tomorrow, if you're still there. And I will send em over the weekend.

The same goes for BIRRP, the Brain Injury Rehab Research Partnership the original Co Producers, before the word was invented. Some time around 2006? Myself and another Survivor, and a Carer, Clinicians and Managers, together we decided on a research question, based on Survivors comments, And the 2 Survivors ask, fellow Survivors their thoughts. at abig reunion of folk who'd passed through the Rehabilitation process of SCBIRT. 

But my Basic Routine is : Pre Chemo checks on a Friday, Steroids, anti biotics (I have argued about the AB!!! but they said I must in their considerable experience take a small dose during and just after chemo           :( How crap is that though!!!  Amd on the Monday, go and be hooked up to Drips feeding 'Mustard Gas' into my vein. Mustard Gas? How do you think they stumbled on that being a cure? Apparently I spend the first week, head in a bucket whilst straining, 9on the closy!!!

I'm so sorry this isn't funny, but I'm very tired.

Oh and sorry Jill I won't be there tomorrow, but will be there onn the 18th, but some of us will not come down to the MUGA until 12? because of the Monthly SC4A meet, at the Arena.

Night, Night

Tuesday, 9 June 2015

Eeeeek PICC line

All my Yesterdays.... were good, :) I went to London for a TLAP meet, and hey I'm getting good at catching trains :D deon't laugh!!!! It's true. With minutes to spare I got from the East End of London, caught 2 trains, 2 taxis, and picked up a curry. It took 3 hrs!!!

And Lovely Todays :) A bit of idle pleasure, was spent drinking Coffee with a long time friend, who knew me in the dull days of Jock, I'm pleased to say that she always knew there was more to me than Jocks Limpet.

Tomorrow?

Crikey
 
  • A PICC line is a long, thin, flexible tube known as a catheter. It is inserted into one of the large veins of the arm near the bend of the elbow. It is then threaded into the vein until the tip sits in a large vein just above the heart.
  •  

  • Saturday, 6 June 2015

    Write Way Group Fridays post :)

    For those of you who eagerly await news of the little writing group, that I attend? I went there yesterday. And he made it tricky??? Creative juices didn't flow, neither did any other sort for that matter. I couldn't be funny, am I turning dull? Maybe it's The Cancer? I am feeling a bit doom and gloom at the moment, I've just read about 'Metatistic' Breast Cancer. Which is stage 4 (I'm stage 3) And there is no cure, your days are numbered, if that appears.

    So bring on the Chemo!!!

    Friday, 5 June 2015

    Poo Face?

    Caroline Waugh Sheffield Cycling 4 All good hair/hat day smile emoticon
    Jill Price and me in the cold last week!!

     
    Not many folk will know the answer, to that. And as you can see the picture is from last week, in stark difference to the blazing sun yesterday.Musn't Grumble!! It was lovely.

    I had got myself, in a right pickle on the previous night. It's a bit boring, so shall I say? Yep! I had expected some rail tickets for the 4th (yesterday) and Monday, to go to London. I was/am doing some work around Self Directed Support, for Think Local Act Personal. Who are sooo understanding of all my individual needs, which in fact I'm not aware of until, my inability to do things right. Becomes apparent, for example.....I received the special delivery from Royal ~Mail, a bundle of letters and a couple of goody parcels from ebay!! I signed, and the wee postie was gone. I put my letters down at my desk on the white printing paper. Grabbing the one from Trainline, to check and put the 100's of tickets in some kind of essemblence (?) Mmmm but they were only for Monday, blast, crikey and all the other expletives!!!

    So I hastily did the things, I'm supposed to do notifying folk etc I won't go into detail on Wednesday. But Thursday is usually a really busy day for me anyway. And my daughter along with 000s 0000s even ? had her GCSE Maths, and so everyone was walking on eggshells, in our house.  So I decided at 7pm to try rearranging a normal Thursday!!! Fortunately I know some kind folk, and I have always been very creative with my SDS budget, so Rocky like a star, agreed to take me to Hillsborough to SC4A at a bargain price. Which I can pay for out of my SDS budget, because it meets many needs including Social, Community, Transport, Exercise, Health and Well being. Then, I stared at the white on white on my printing paper!!! It was an envelope, with Rail tickets in for the 4th!!!! How silly I felt? In mitigation? My eyesight is shit!!!I can neither role my eyes to look down, or judge distances!!

    It does mean, that TLAP can now get a refund though.

    Thursday arrived and I took Holly dog for a Cycle, in the Meadow, where I met Polly. Polly was possibly going for her last walk, ever. It was very sad, to see the Greyhound stumbling round. Head held low, eyes were dull and lifeless. She had won many a Trophy in her day. Apparently she could no longer lie down. She had spent the night pacing around the downstairs crying. With her Mum and Dad (adopted humans) sat up with her. I secretly thought they should have her put to sleep :( But Hey, she isn't mine. And regretfully, I know I've had pets before, which I haven't let die.

    I arrived at Hillsborough, in the glorious sunshine, the courts were packed with Cyclists on 2 wheels, and no one had arrived yet to cycle the adapted bikes, except for David. As in Sue and David, who are both founder members of Sheffield Cycling 4 All, David brings his own adapted Cycle, in Sues car. He is the Survivor of a Stroke, which means he's dependant on a crutch, to get about. But moves like a dream, once transferred onto his trike. Sue produced flasks of hot water for tea and coffee, and me? I had actually remembered milk. Ahh then I saw Alan, who was very frail. And was being supported a lot by one of my bestest friends, the beautiful Dave. On a 2 wheeler. Eeeeek, I rushed over and begged Alan to try a 3 wheeler instead. ' Come on Alan, lets go for a cycle around the park?' I said, and off we went. He did confess to me that at the age of 82!!!!his dream was to buy a Brompton!!!! What an intelligent articulate guy he was though.

    And Jack came back from last week, he had worn out his carer cycling around the park. His carer rested on the concrete next to my trike, and laughed declaring that he was knackered and that Jack could go alone now. He told me that Jack was a changed person, since he'd come cycling, it gave him so much confidence. Because he looked cool, on his Trike, and it could go fast. And everybody he met at SC4A, was so accepting of him.

    I gave my personal Cycle Trainer a birthday card. I shan't give away his age.....but 'Your looking good' for it. Even better when you've been for a cycle. :)

    Sunday, 31 May 2015

    Strop!!!

    I cycled my trike to the forest, as normal today. Only, I thought I better be quick because the delightful new bush cutter was coming!! She's called Julie, a different one to Julie Andrews, who some of you have heard of.

    I was just in the meadow bit, so I extended the lead, and Holly skipped round, tangling the lead, and I don't know how but so tightly, it had got under the mud guard, and even trapping the tyre in 2 halves....I can't explain!! I'm just not articulate enough!!But the wheel was jammed, the lead was jammed. So I had to be a boy scout and take my hand bag off (I don't know how many scouts have hand bags!) aqnd tie it to Hollys collar. And lift the stationary wheel in the air and pull Ziggy, back to my house. Now I was nearly crying, I had passed several folk. Non of who offered to help, my new moby screen is a nightmare, because I cant use it outside, because I can't see the screen. Then I spotted Finn, my little darling, rushing out in his socks to see if he could help. But he didn't half give me abuse when he reached me, and saw what the problem was. Any way I was very childish and through the bike pump at his feet!! And stormed off whoops!!! I can't fall out with my friend and Ali, so I apologised straight away. And he won't forgive me :(

    I've spoken to Rocky, whose a lot cheaper than Steve, and asked him to come and help me, I have tried really hard, sooo hard, I wanted to cry :(

    On a brighter note, my lady garden, the grassy one with privit? Is looking much better :)

    Thursday, 28 May 2015

    Old...:) as in Usuals!! and some Newbies

    Fantastic, a new chap came this morning at 9. We never get folk at 9, so he was very welcome, and had Steve and 3 volunteers fussing around collecting money, asking questions. It was great I could feel his excitement as he decided on a bike :) Richard and his carer, were off round the park, after displaying sense and control. They were very happy. Next a Family of 4 arrived, the Mum Debbie was lovely, she said '' Oh your hair looks lovely, since you've had it cut' I asked if we'd met? Oh no but I've seen you here with the bikes a lot! said the Mum who was the lovely and called Debbie. Now I cant remember the name of the little boy other than to say I want to call him Bob!!! because that's what he did constantly whilst on the Side by Side hand crank with James. And according to his Mum and Dad that's what he does when he's happy :) James will be like Popeye!!! Because he really didn't want to stiop. His Sister had the wheel chair Hand Cycle, and she did really well, just needing an occasional push.

    It was so good seeing 3 new faces, who were all young and enthusiastic. And would have possibly cycled all day. We could do with some more bikes, Steve comented. HYey that would be fab, if we ever got to that stage!!

    Ahhhhh, meanwhile in the Kitchen area, my heart broke a little :( The Beautiful Dave (provider of food and drink) xxxx and his little Harem of adoring women.....and Roy!!! This woman, came rushing back in the door holding very delicately a speckled baby Thrush (not a Veneral disease!!) with it's head tilting and it's eyes closing.... and then they closed, and death took the bird. Actually Dave did!! And placed it under the hedge :( But the woman, told of how she'd rescued the bird from a group of Magpies, who were pecking it , poor thing.

    I cycled back down, to see folk before I had to leave with Rocky, and saw the lovely Pat, Charlotte and Jim. Immediately Pat saw me her arm shot up, I guessed she was pleased. Hi Jim, and Charlotte I will see you next week.

    I missed Marjorie, Barry, Jill and Friends Together. Sorry folks.xxxx

    Wednesday, 27 May 2015

    A Walk In The Park!! :)

    I know everyone's just presumed that my leg is back to normal, after sustaining a horrible double fracture last year, sorry to go on about it all the time :)Chris Baddog Borham's photo. But I walked the furthest, I have since that day today. With Becky Virgo, and her children, and Holly dog. As well as doing my usual cycle in the meadow, and to the shops :) But I had an insy fall last week, that I aint mentioned? But I believe I cracked a rib? So I think I did well, steady on, don't all agree at once. With Well done Caroline!!!
    Click for Options

    Look at Holly dogs very grey face.

    I read with interest that Sheffield Council, has got ££££s towards the integration of Health and Social Care???

    I also hear from my good friend within Health Watch, that Basically folk with Brain Damage of varying causes, are invited to work with Paces in Sheffield, on a brighter future??? and the next Paragraph, was about Breast Cancer Champions??

    I'm going to Sheffield Cycling 4 All tomorrow, with Rocky, and I will have to come back with Rocky, at 1.00 because Community Transport let me down AGAIN. I could hang on for a paid lift at 3.00 but, I don't think I've got enough stamina. But it means I will miss the big group, Friends Together, who are such happy guys. They make me smile.

    See you tomorrow if you're going :)

    Monday, 25 May 2015

    :) Friendly Me

    I forgot to mention, many things yesterday. One of the things, was to folk, who know me am I soooo transparent? I was just getting Ziggy out of her Cave, (purpose built bike shed, under my porch). I'd tied Holly dog up, because she's not good :( And this woman, walked past my drive, stopped , and started talking about Holly dog. Saying how beautiful she was???? errrrm, not really I thought! Bless her, she's got qualities, but beauty isn't one of them :) I told her how we were off for a cycle in the meadow, and smiled. To which she responded with, 'My names Zoe, and I've got Breast Cancer,' and heavily drawing on a freshly lit cigarette. Oh....ok, I replied and thought do I tell her, about me? Hey since when have I been able to hold back? But I waited a bit, bless her, she knew nobody in Sheffield. But after her diagnosis, she had thought it sensible to move from Wales to Totley Sheffield, where her Sister lived. Wow!! I'm very lucky to know so many folk, and be helped and supported.

    I have taken the first steps, in the Saga (I hope not) of getting my Pedal Assist repaired. West Country Recumbent have been lovely and helpful. My plan is hopefully, to send my battery and charger, back to York. Fingers crossed they will be able to repair it. Return it, I'm hoping it's cheapish, I told them my circumstances, because it's really hard explaining why it's really, really important. Without giving a clear picture. And hopefully, they
    will send it back repaired, so that Steve Marsden, can fix it back to the Boom, which is a different one, to the one that has my Slumph drive on. Hey do I sound impressive?? Nah, I thought not :) I can't fool many folk, into thinking, I know the mechanics of a greenspeed trike.

    I also went to the Moorlands, via car, for tea yesterday with my good friend Kathryn. We don't half put the world to rights.

    Oh yeah a big THANK YOU to Mcmillan Cancer, for their generous cheque, towards the additional costs, like a body pillow and a digital thermometer.  They look so comfortable the pillows, but how creepy is this!!! I'm not getting one of these sort.
     
    Boyfriend-Arm-Body-Hug-Washable-Novelty-Fun-Bed-Pillow-Blue

    Saturday, 23 May 2015

    The Neccersaries and unneccersaries? :)

    The post I have been waiting for arrived today, I was quite .....I am quite excited?? Nervous?? But the date arrived for the beginning of my Chemotherapy treatment. And I kind of think the sooner it starts, the sooner it's finished.

    I have actually got The Magic Rounder -bout music going round in my head, as I rush from each activity, to new experience which undoubtedly will make me vomit :(

    Just let me say this super quick, I think I'm off to London on the 8th, for an NCAG meet, and I think it's to identify folk who are interested in publicity, and networking. Just the sort of stuff I love, but I am not very technical so ?? And the best bit, is that my friend Kev Hickman, is going to meet me at St Pancras, for lunch??? No Pressure now Kev :) Oh and West Country Recunbent are absolute stars, I must get my battery for my Pedal Assist fixed, I have made the first teetering steps into doing just that. And I could so rant about s'thing the CTC have done, or not done!! But another time.

    I've just reread that, and it's a bit like word association  :) But only I know the association!!!

    But the thing I'm dreading more than the Chemo is happening on the 10th, it is my PICC line, which I know is better than the prospect of my veins collapsing all the time, and no it really does happen to me a lot honestly.. I'm not just being my usual over dramatic self.  Anyway, it looks terrifying on the Informative very scary leaflet that I have been sent. It does advise, that I bring someone who doesn't mind having their hand held, and crushed. Why can't I have sexy attractive strong veins, that would take on a bullet, not shy away from and collapse at a pin prick!!

    I am assured I can cycle, skydive, trampoline and wear a tampon, whilst wearing a flowing white dress and a PICC line!!! So I intend to go to Sheffield Cycling 4 All, on Thursday the 9th.

    I feel there ought to be a drum role, Friday the 10th I have my first Chemo session.

    Lorraine bought me some Adult Zen colouring books, and some cool coloured pencils. And the amount of times I've had to stop my children aged 16 and 12 from stealing them is untrue!! So I'm really looking forward, to having a bash, at those.


    Bye for Now......xx

    Friday, 22 May 2015

    Going, going, nearly gone!!!

    Caroline Waugh and bird of paradise - which is which?

    My smile probably doesn't fool anyone??? I am petrified, of the coming months. But not as frightened as I'd be if I wasn't suitable for Chemotherapy.
     
    My morning began with a Cycle to the local Meadow, with Holly dog, poor thing she's not keen on Thursdays. Not that she's intelligent enough to know!! That she will be locked in her crate until lunchtime!! She just happily skips along, next to my trike. She's got used to it, but it's difficult for most dogs, because I don't actually go that fast, and whippets can't trot!!
     
    Steve picked me up, with my trike ...Ziggy. in his van, and off we went to Cycling 4 Alls meeting. Where I am Joint Chair. I know we wouldn't have survived as a group, if it wasn't for everyone's continued work, we make a good committed team, who are so passionate about the adapted cycles. And what a difference they make, to peoples lives. Anyway, enough rambling I'm sure you've heard it all before, gi me my soap box!!!
     
    It is extremely quiet at the moment, between 10 and 12, so any punters reading??? Please come then :) But come 1.30, all 16 cycles were in use, by a group of regular Punters from Friends Together, who are brilliant. They are so happy and enthusiastic, the staff share that enthusiasm. And it really shows :)
     
    We also have the People who come, with their own Family and Carers like the Lovely Pat, who to be honest it's hard to tell, what she's thinking. Unless you know her well, and I am lucky enough to know have known her Carer since I was 18, and first worked at the main Psychiatric hospital, in Sheffield, which sadly?? has long gone and is now a new housing estate




    I was delighted, to meet some new fascinating people yesterday, who came to look at Sheffield Cycling 4 All. One particular young lady, so reminded me of me!!! She had had, a Traumatic Brain Injury, and communicated only with a beautiful smile, and thumbs up and down for yes and no!! I told her, I was the same once! and I think she took some comfort out of this. Because Although, I will never get back to how I once was, when I was young, very fit, but actually smoked like a chimney!! I am happier, and more independent, since my brain injury, recent fractured limbs. and cancer, than I was before. Maybe it's because of my beautiful kids?? or being happy with my own company sometimes, and not constantly searching for a partner, I'm just enjoying my life how it is and I take on the challenges life throws in, but not to do battle with them. But to live with them, and embrace the changes and different experiences.

    Wow, this is a deep and heavy one!!!

    Sorry, if I missed out anything., or anyone :)

    Tuesday, 19 May 2015

    My Paps!!!!

    As I sat there in the consultation, with my sister in law, Sue, and my Paps out it was decided that I have no infection. I also have no shame!!! with Nurses rushing around, bolting doors, and drawing screens more closed, just in case someone was to enter the room without knocking!! Heaven Forbid!!

    Anyway because my wound infection, has cleared up beautifully, I think I deposited all the yukky smelly stuff at Steve Marsdens feet, last week!!It was decided that, I can start my Chemotherapy as soon as....and for those of you in the know?? about this type of thing. The anti cancer treatment isCyclophosphamicle andDocetckoi or 01????


    My brother and Sue, whose been with me today :) Have spoilt me, they bought me a new hanging basket. A proper bathroom door, and are looking at some super cool bedroom curtains.

    If anyone knows owt about the treatment I'm having??Will they tell me? I'm going to google it, it's probably a mistake, ignorance is bliss type of thing.