Saturday, 9 May 2015

''Just suck my Tit'' - or not, as is the case!!

My dressing of course!!!

Negative Pressure Wound Therapy System

Now more than ever, there is a drive to treat patients away from resource-intensive hospitals, to treatment in the community

Above is the thing that's worked perfectly until this morning. I think, to be honest I am a bit allergic to the dressings again. Because during the night I had rubbed the dressings off my skin, there fore breaking the seal. That makes it work. So I awoke to the buzzer sounding in my ear. I phoned Ward F2 at the Hospital, I think the nurse that answered was the one who nearly carried out CPR on me, when I was admitted to the ward 3 weeks ago. She passed me on to the ward sister. And it is so bad that not more is done for single people, who don't have a car and driver at their disposal. I promised that I would get it checked out on Monday by my GP or a district nurse, and she was happy. So I am happy.

CPISRA World Games


Apart from, the fact that I missed my 'Games Starter' Induction, in Nottingham for the Cerebral Palsy World Games:( Which would have been so fabulous, because I couldn't believe my luck, there was a train to Nottingham,  leaving from Dore at 8.30am. Arriving at 9.30, just a short ride on the tram. And I was there at Nottingham Trent University, where all the Game Starters, were to meet with Team GB, and hear what would be expected.

I know I couldn't have done it today:( So I'm glad I didn't push myself. I did however go for an insy ride with Holly dog, to the meadow for a poo. Her you must understand!!! It was so blustery, I love cycling in that type of weather my trike, is made for it.

Friday, 8 May 2015

Bring It On!!!


It's me, showing off my best attributes!!! I'll let you decide!!! (the tops of my shoes were polished) and I feel good, about the oncoming Chemo?


Gill Price's photo.Photo by Gill Price :)

I am eternally grateful, to my breast man with the little hands, and Kath my Cancer Nurse. And I know they're not directly involved with cutting services, and where money goes.  But I had to let it be known, that I was in a terrible state, which could have been so easily prevented. Instead yesterday, they were talking of admitting me to hospital, there an then. Wiring me up to a drip of  Anti Biotics over the weekend, costing the NHS £1000s, in extra care!!. So anyway after I'd 'Vented my spleen' (in my dreams, that was removed in my original medical calamity!!) He continued to try and squeeze my 'Right Tit' that isn't very right!!! I calmly said ' Oooh You'll not get very much out, I've milked that udder this morning!!!':D I was ignored!! :D But he did comment on how clean and cared for it was, considering I had gone in there with a Sanitary Towel strapped to it, with Micropore, I took this as a compliment. Whatever anyway, it probably saved me from spending time in hospital.

The Very good news is, that my Cancer hasn't spread. He removed it all :)...leaving only a 5% chance of it ever coming back. But if (yes please) I am suitable for Chemotherapy, 5% goes down to 0% chance of it's return.

I'm taking 4000!!!!! mg of Flufloxacillin per day by tablet.

And If you see me smiling it's because I've got a Pad cupping my Right Tit, with tube that connects to a battery in my pocket, that intermittently gives it a squeeze!!!

Thanks to so many folk for yesterday, Sue for coming with me, laundering my Sodden, smelly sweat shirt,  bringing me back down, to earth with questions like, should Caroline be Cycling?? :) ...drinking? Which I haven't done since surgery incidentally, drinking that is. And beautifully delivering me to SC4A, after my appointment. And Gill for 'Get this, it's amazing!!! ' Cutting her hair, in preparation, for the shave off!! Marjorie and Barry, for bringing my favourite Yougart Raisins :) Dave, for being Dave and getting my lunch again. Steve, James, Sue, Simone, My friends from Friends Together, Charlotte Jim and Pat, Oh and Ian and Dan. And anyone else who shared my experience yesterday.  I do love you all, you keep me alive!!!

Wednesday, 6 May 2015

'Titless Wonder' becomes 44 G overnight!!!

I actually had not a bed nights sleep, all things considered. But when I awoke, My Right tit, was bursting, and hard and painful, and I was still frozen so I rang the breast clinic, and my gps for some antibiotics. (how many buttons must you press to speak to a real live person!!The bouncer woman receptionist, said 'Oh No love, What's a lumpectomy?'

 Urrrgh. Kath my Cancer Nurse called. And suggested I call (another phone call) the district nurses, to come out and visit.

Meanwhile Steve Marsden was cutting grass, fixing doors, and putting the shower curtain up. I love wasting his time :) and was enjoying Morning Tea, with him.

Foul smells kept drifting, and I naturally blamed the dog. And we laughed at how much dogs trumps smell!!! Then to my absolute horror, I looked down, and it was as if one side of me was entering a 'Wet T Shirt competition!! Steve bless him, had to confirm that, yes indeed, it was my right breast!! The wound had split open, due to the swelling. (He will be having nightmares forever) He waited till the district nurses were on their way, and excused hiself (was probably chucking his guts up) Nurse came and Milked my udder, except it certainly wasn't white and milky, More yellow, and very stinky and ran like a torrent out of the side of my booby.

I really have no shame :)

Despite this I needed some shopping and a shot of my medicine that never fails. Cycling :) So I cycled with Holly dog, to the local Tesco, and Steve collected me, shopping, and trike.

I am going to SC4A tomorrow, after I've been to the hospital, I'm using hospital transport, Sue my sister in Law is coming too. And Community transport, from Hospital to Hillsborough and home. I will find out if (probably), my Chemo starts and if it's spread to my Lymph Nodes, and I need another operation. Talking of which, I can usually pull my heavy self, into Steve's car... and I couldn't today. :(

Tuesday, 5 May 2015

Sorry about that folks!! i am back

Technology used to really bother me, and the fact that i am easily confused :) But hey it gets done eventually. When lovely Jon Frost, and his wee irish elf :) I say elf, in  the fondest of ways, he's like the courier, for broken computers. And delivers them back at the end of the day, all fixed  and fabulous, like magic. I always have a wee chat with him, and of course he asked, how I was :(and I started to cry :(, I've hardily slept all night, I nearly fell downstairs at 3, because in my haste to have an argument with  the bathroom door, I lurched for the hand rail, missing it!! So I should have fallen downstairs??? But my bonkers brain, saw pictures of blue flashing lights all inside my skull of course. And I thru my body into the bathroom, saving myself from DEATH!! Ok, Ok, maybe not.

I haven't cycled for 2 days!!! It's not heard of !!

And possibly why I am tearful, easily remedied? Not when 'your in the Zone'

I feel like, I've got a temperature, and I'm freezing my Paps off!!! literally drinking every water based drink in the house (which makes me wee all night) My beautiful nipples :) sorry to give you this image. Are hurting because my nips are going erect because of the cold. Which is excruciating!!! and the reason why I don't want to go outside.

Did you see my Heroin? last night in the C word?? Lisa Lynch, I started following her blog, about 5 years ago. I cant recall the name of the actress, who played Lisa? She did a fab performance though. I want to keep being me, all the way through my treatment. :) I want to Live with Cancer, not thinking that I'm raging some war, all the time. I'n not a nasty person, I don't do 'Battling'

Friday, 1 May 2015

I missed yesterday :( At Sheffield Cycling 4 All

And I didn't feel any better, for taking it easy. So I went for a gentle cycle this morning....steady...on, it was only about half a mile!! That's about as  far as I can get before I have to put in any effort, with a hill.

On closer inspection, (I have difficulty because I can't look down) I have so many attractive features!!!!My bicep is ok, the nearer the elbow you get.  But my shoulder is mushy to touch :( It could vaguely get away with been normal. But I know it's not normal for me!! I am usually very muscly, because my right side is my NORMAL!! side. (No part of me is normal, never has been and certainly never will be) But I have 4 wounds where my Lymph nodes were removed, and I removed the dressings as instructed, by the hospital, and it was so very painful, closer inspection today confirmed that I had an allergic reaction, to the surgical tape (nice :)) And when I pulled the tape off, I pulled the skin off the blisters!!! It's been left to scab and f#**** itch!!10pc 1.25cm*5m pe steel tape surgical pe adhesive tape PE protective film tape medical perforated breathable medical pe tape

I wish it was easier for me to cycle :(

I have booked  Community Transport, to pick me up at the Hospital, after My Appointment, when I get my Cancer Results on the 7th. I have missed people from Hillsborough too much, to miss it again.

Ahhh Marjorie called today, bless her to say that she had missed me, and to see hw I was.

Thursday, 30 April 2015

:0( I din't go to SC4A!!!

I woke this morning, with an hour and a half to go, before My lift collected me. And fair enough my lift was from Rocky who occasionally supports my friend Dave the lovely Dave :) At Cycling with Confidence (All the different cycling groups have new names :) but they all do the same) Anyway Rocky, would normally cycle to Hillsborough, but hearing of my plight, offered to take me s'times. Which was so very kind of him. Anyway with sore 'Tits' 'Breasts' 'Boobs'??? Mmmmm, what shall I call em today? I quite like 'Lovely Jubbilies' but I think it's a Tit day!!! But I was feeling sorry for myself, and sore, unattractive, and a bit 'Vinegar Tits!!'

So, I didn't go to Hillsborough today, an no one from SC4A, missed me, they coped!!!

Hi Kevin, will you do me a guest blog, about Disability Cycling in Germany please?? :)

Wednesday, 29 April 2015

My Lymph Nodes, and arms like turkey necks

I was told by Mr Kohlhardt, a rather small man with small hands, which I imagined cupping my rather large breasts :) a strange vision. The nurses had told me, that he was impeccable in his neatness, and took a pride in his workman ship. Well in 95% of cases, but unfortunately, I was the 5%, that wasn't impeccable!!  I'm sure you would not believe my bad luck?! Life is so very unfair. I really am not smiling at all :( But I went in the shower tonight, and half my bicep rises up, and is very muscley a bit popeye like. and as if taught by a band the other half of my bicep hangs down, like a mirror image nearly.

Life's a bit shit really. but at least I have it!!

But I have got an appointment in his Clinic on Thursday the 7th.

And if they'd said to me, Oh well we can test your lymph nodes to see if it has spread? But your muscles will collapse, but you'll live??? I know what I'd have said???.....just do it.

So now, I've wiped my tears, and ready for another day, at Sheffield Cycle 4 All tomorrow,  I will probably spend my time, drinking coffee, but I know I won't?? After, the nice messages, I've had from folk, I will have to say hello to everyone.

I THINK I'm going to Nottingham on Saturday the 9th, for the Meet and Greet the Tea\m of Games Starters, who are facilitating the Cerebral Palsy World Games. Of which I have been chosen to be one. It's very exciting!!! It could nearly occupy my thoughts, if it wasn't for C!!!

Tuesday, 28 April 2015

To Do or not to Do???

I have been lucky enough to be selected, as a Games Starter, for the Cerebal Palsey World Games in Nottingham this year. Mmmmm I don't know, I mean I'd love to, how exciting!! But what with the BBig C and chemo...?

Monday, 27 April 2015

I feel a rite tit!!

Most of the time!!!! with my right palm of my hand , always making sure my clothes and the medical dressings are protecting - a bit, but it does get so that that won't do, and is replaced by stumpy fingers - a pen- scissors. My wound is sending me bonkers. :(

I was contacted by the Cerebal Palsy World Games today, about training to be a games starter. For the World Games in August, but I've told them I'm not doing it. Which is such a shame :(

I went for lunch today, with my mate Anj, who had really hurt herself. I wish I could help her, cos she's always there for me. But Amazingly I cycled!!!! and felt really safe, but my wound is F* itching like bilio. And when I'm dancing roumd the frame of Ziggy to get on and off.

Sunday, 26 April 2015

What A Day -

Space4Cycling Sheffield's photo.

It looked like great fun, for 1000 people, really proving that in Sheffield really is 4 All :)

Thanks to Stuart Ritson, who managed to pull off, what I have done before but with a harder Cycle - see top picture to0 raise publicity for SC4A. I aint really communicated, with folk, because I'm pretty self o0bsessed at the moment. And that's why Saturday was a pretty major day for me, because I was discharged from hospital, after just one night. Having undergone a Lumpectomy, on my Right Tit!!! or Breast, if Im being proper.

I woke up from the General Anaesthetic, immediately looked down at my chest. And well Ive still got a cleavage! So there is hope, although I have big thick wads of dressing filling out the divet that's there(apparently)

I had to smile at the young nurse, who admitted me to the ward, bless her she can't have been older than 25. She saw me and quickly took my bed, rammed it up to the wall, and plug sockets, and lowering my back rest, screaming her eyes blown, her left eye!! I felt like going along with it for a while, but the thought of electric pads, made me say 'Hey' I'm ok honest!! But even when I said that I was ok, she said 'Yes but you don't know what'sw happened to your eye' 'Urrrrr, I think I do I replied' :D

Thursday, 23 April 2015

Im unworthy!!!

The world is full of very beautiful folk, most of who cycle :0) But saying that I've got lovely folk looking after me tomorrow. Who thankfully drive and are taking me to the hospital for my operation.

I'm having my right tit chopped at 12.30 tomorrow :( My beautiful breasts!! or breast.

So think of me chicks. I do intend to be fine, and have infact booked community transport to take me next week.

It was great today, really lovely and sunny, lots of happy people.

Wednesday, 22 April 2015

It's Me!!!


 
Can you see the resemblance? Apart from the very obvious bottom heavy one!!!
 
I just keep falling, I'm not really aware of going dizzy as such, but my balance is totally 'shot to bits'
 
I phoned the Cancer nurse today, and had a long chat, about it because I am concerned, that this was exactly what happened with my Dad. Who died at the age of 80, of Liver Cancer. Which is pretty good going, as he too had Brain Damage, sustained by a Traumatic Brain Injury. And if you have sustained a brain injury, your life expectancy is reduced, by 12 years on average. Apart from my Dad not having Breast Cancer! (which isn't as strange as it sounds) My Dad and I have an uncannily similar medical history.
 
On Monday, I kind of fell forwards for no reason, and landed on my Gorgeous Trike, it's when I feel safest is when I'm grounded on my trike. But getting on and off is a different matter. Ziggy (my trike) is really low to the ground, and it's definitely down to skill and practise and not stomach muscles that makes me just find it a doddle normally, despite my disability.
 
Let me tell you what happened yesterday, to enthuse all my cycling buddies. 
Firstly, I don't very often know what day, it is at the moment. I hate feeling like this it's doing my cake hole in, and really worrying me, I usually have to be organised, with my life. After waiting in all day for a Washing Machine repair man, I rang them angrily at 4.30, wondering if he was coming? ' Yes Madam, he'll be with you tomorrow, as planned' :D What an arse!!!! I am getting to the point honestly!! Anyway, I had to dash to the co-op on Ziggy, and because I haven't got my pedal assist fitted anymore, I really go slowly up the hill. Good job too because as I got to the top, the rear of my trike, began to move sidewards, and back again. A very strange sensation. So I pulled in and parked up, only to discover, my back wheel was loose!!! (I might usually say it had come off) but I am prone to exag
 
gerate. So I searched my girly hand bag, and found a spanner set!!! and fixed it!!!! all by myself!!!! I'm mighty proud. Although I will get it checked over tomorrow, at Sheffield Cycling 4 All, at Hillsborough Park between 10-3. :)
 
Hey I'm right pleased to read, that SC4A are taking part in the Space 4 Cycling on Saturday the 25th, in Sheffield. I'm not able to go I will be recovering from my Operation in Hospital. If any cyclists can help out by escorting the Side by Side Tandam, into town from Hillsborough Park, can you meet at Hillsborough Park, at 9.15 am please. And check our new website out athttp://sheffieldcycling4all.org/ designed by our newest committee member Stuart Ritson.

I've just thought this isn't me at all, cos Mr Wobbly CAN'T fall down!!!